HARMONY in personalized Medicine
The availability of huge amounts of personalized data from many patients becomes even more important when medicine becomes more personal. Cross-analysis of this data is a prerequisite for gaining new insights and devising helpful approaches. There is a news item from the university of Ulm that highlights this aspect:
(Translated from the original news:) Big Data, i.e. huge amounts of data is regarded as an excellent opportunity for medical research. Patients with diseases of the hematopoietic system (generating blood cells) might profit from a unique data collection: 51 partners from 11 European countries collect anonymized patient data in the project HARMONY (Healthcare Alliance for Resourceful Medicines Offensive against Neoplasms in HematologY) funded with several million EUROs. Analysis of this huge amount of data shall yield valuable insights into diseases such as leukemias (AML, CLL, ALL), lymphomas, multiple myeloma, myelodysplastic syndrome, or malign diseases of the hematopoietic system in children.
A thorough discussion of data protection guidelines and their necessary adaptations is meaningful and required in this respect. It is mandatory to prevent data protection guidelines from harming the very patients they should protect.
Our member Dr. E. Precht alerted us to this news. Many thanks for that!
Framework text by Thomas Werner, Chairman of the executive committee